Thursday, January 31, 2008

Are you going to finish that?

I have trouble finishing things. About one-third of one of my storage cabinets is filled with projects that I've started, but just haven't found the right umph to finish.

You know what I mean, don't you? The cross-stitch kits that are done but frameless, purses that are knitted but lining-less, ornaments that just need the hangers attached, partially-painted paint-by-the-numbers canvases. You name it, I've probably got a project in my cabinet that fits the bill.

I decided that I need to have something that I've finished, so I've rooted out three purses and put the linings in them. They look really cool.



Not necessarily a professional job, but good-enough for hand-made and a first try at lining a purse.

Not finishing things isn't limited to my crafting. I realized this morning that I started a story here and never let all of you in on the end of it. Here's how things turned out with Evan at the hospital post-surgery.

He stayed at Nationwide Children's Hospital for three days to try to determine what was causing his belly pain. He started pooping and started feeling better, so we think he had some stool "caught" in one part of his intestines. Once it got moving, everything got better. He went back to school on Monday, Jan. 28, and is in heaven. He has been exhausted when he gets home, but that's OK. He'll build his stamina back within the next week or so.

Now we're dealing with Terry's dad being in the hospital after having a stroke on Jan. 26. He can't move his left side and is having some trouble with his sight, but he can talk and understands that he's had a stroke. He knows who people are when they visit, but he sleeps a lot. He's at Riverside Methodist Hospital in Columbus and will probably be there for awhile. Then he'll be moved to a nursing facility for rehab. Terry described the next several weeks and months as a marathon and I think he's right!

With any luck, I've finished more than just a few purses today. Thanks for visiting!

Until next time ... Susie

Monday, January 21, 2008

In the hospital ... again

We're back in the hospital. Oh, I hate this place!

After all the trouble with the clogged g-tube and replacing it with the creaming, I thought we were doing well. But then Evan started having extreme abdominal pain late Saturday night that continued through Sunday. Then he got a low-grade fever.

So back to the ER we go. This time more x-rays, a high-contrast CT scan, and blood and urine tests. Everything was normal -- or at least normal for Evan. So he was admitted for observation.

Then, one of his blood tests during the night came back with high pancreatic enzymes -- a sign of pancreatitis. That's what he's being treated for unless they find something else.

This kid just can't seem to get a break.

I always carry my back full of "things to do" so I've got plenty to read and plenty of knitting to work on, I'm just too tired to do anythinn more than sit and stare into space.

Terry and the boys came to sit with Evan for awhile so I could walk around and get out of the room. But now it's time to go back. If you're of the praying sort, please keep Evan in yours. Thanks!
Susie

Sunday, January 20, 2008

May I vent, please?

OK. This has absolutely nothing to do with knitting, but our family's last few weeks have been rotten and I need to vent. So stop reading now if you don't want to listen. I e-mailed this story to a friend last night and decided to basically use the entire e-mail as my blog entry for today, so here goes ...

Terry, my husband, and I have three boys. Derek is 10, Philip is 13 and Evan is 15. Evan was a 26-week preemie, has Cerebral Palsy, seizures, blindness, uses a feeding tube and wheelchair. He weighs about 80 pounds, which I can handle on my own, but it’s not easy or safe for either of us.

He saw his gastro surgeon, the one who placed his g-tube when he was a baby, several weeks ago and we learned we would need to schedule surgery to move his g-tube site down. He’s had the same site since he was a baby and as he’s grown it’s migrated up his stomach. It was up underneath his rib cage. So, not an emergency, but still something that needed to be done. We decided we’d do it ASAP, so he wouldn’t miss much outside. When it’s cold, he spends most of his time inside. Not so when it’s warmer.

So, Jan. 7 he went into Nationwide Children’s Hospital in Columbus, Ohio, to have a PICC (periferal intravenous central catheter) line placed and he had his surgery Jan. 8. For some reason, he was the last kid on the surgeon’s schedule, so we waited around the hospital most of the day Monday and Tuesday. They finally took him back for this supposed one-hour procedure about 4:45 p.m. We waited and waited and waited. After about 1.5 hours, we asked what was going on. Oh, he’s just fine, getting ready to close now, just a few more minutes. Another half hour goes by. No Evan. Again, he’s fine just a few more minutes. Finally, after another 30 minutes, the surgeon comes out. He did fine, but they couldn’t find a needle. He’s sure it’s not in Evan, but they’re keeping him on the vent and sedated until all the x-rays can be read by several doctors to make sure the needle wasn’t left behind. (This is OK by us as we want them to make sure there's not a stray needle in him either!) It wasn’t, but I think that extra hour or so on the vent came back to haunt us later.

As it was, he missed his 1 p.m. Depakote and baclofen, his 5 p.m. carbatrol and his 7 p.m. depakote and baclofen (These are medications to control his seizures and help with the tightness of his muscles due to Cerebral Palsy). He didn’t get back to his hospital room until 9:15 p.m. Didn’t get most of his make-up seizure medications into him until midnight. So far, so good, right.

Well, Jan. 9 he stopped peeing. His bladder was overfull. They think the anesthesia slowed down his ability to pee and now that his bladder was full, it can’t contract to get rid of the urine. So at 2 p.m. they (nurses and doctors on the floor) started trying to insert a catheter. No go. After about five hours of trying several different kinds of catheters and having this kid scream because, of course, they don’t use anything to numb the pain or discomfort (they did but only after about the fourth or fifth time of trying and that involved pushing some lidocaine gel into his penis, which I wouldn't think would feel too good to begin with), they decide he’s in distress and needs to have a super-pubic catheter placed which goes directly through his abdomen into the bladder. SO now he has another surgery scheduled to place a catheter through the penis and find out why they couldn’t get one in the day before.

He came home from the hospital Jan. 12 with the new g-tube and a urine bag. We went back to the urologist Friday to get the catheter removed and he peed fine the rest of the day, YEAH!

But, then his g-tube started running slow and at 5 p.m. it gets totally clogged. We can’t do anything to get it unclogged. So off we go to the ER to see what they can do. We left home about 6:15 and got to the ER about 7, got back to a room about 8, saw our first doc about 9, x-rays at 10, lots of confusion about what to try. Finally decide to take him to surgery Friday night to replace the tube with a new one. Get to the OR and find out, oh no, we’re supposed to go to radiology for them to try first. Go back to radiology, they do their thing – of course with no anesthesia or anything to ease the pain of discomfort. He’s screaming the whole time. It was awful. Then we go to a room to spend the night – oh, no, they’re going to release him so he can go home. So we got home about 1:15 a.m.

Not fun. I’m too old for this and I’m tired of docs and nurses assuming that a procedure is just uncomfortable and not painful. Part of me believes they think since he's not "normal" they don't need to worry about the pain. That he won't remember it so why control it. I really hope that's not the case, but I can't believe they'd allow a typically developing 15-year-old to experience that kind of pain without doing something to ease it. I’m seriously thinking about writing a letter to the hospital to suggest extra training for docs and nurses on how to deal with patient’s discomfort. But I’m too tired now.

He was awake and in discomfort most of last night. Now I'm dead-tired, not just too-old tired. Terry took Derek and Philip to Sunday School and I handed off my Sunday School class to another teacher. Instead of napping, I'm cleaning the kitchen, cleaning the living room from the mess the kids made last night and making lunch. It never ends!

Ahh, the life of a mother. Most of the time, it's great, but there are those few times when it just sucks. Time for a nap.
Susie

Wednesday, January 16, 2008

How much is too much?

Why is it that spouses just don't understand the concept of a "stash"?
For those of you out there who are crafters, the idea of a stash is perfectly normal and acceptable. But for someone who doesn't have the crafting gene, a stash is wasteful and unnecessary.
Lately, I've been wondering if one woman really needs 31 storage tubs of yarn.
Yes, I counted. It's hard to avoid them as I have them stacked throughout my corner of the basement. And that doesn't count the three storage cabinets eight feet tall and four feet wide that are full of fabric, cross stitch materials and other assorted "necessary" items.
This is the time of year that my husband starts getting ready for the annual trek to the CPA to prepare our tax returns. This time every year I get the cold shoulder for a few days because of all the money I've spent on unnecessary things -- like yarn, pattern books and the like. Some years, it gets awfully quiet in our house. This year is one of those years.
But the dreaded has happened. My husband says he's taking over the monitoring of all our accounts and has laid down the law to cancel several credit cards. I've done this, with a little trepidation, but in the full realization that it was necessary.
I've decided I have a disease and I need his help to cure me of it. Now, whenever I have the urge to order something from Smiley's Yarns or Discount Yarn Sale just because it's only $1 a skein, I'll remember that I'll need to justify the expense within the next week instead of several months down the road. This will be good for me, I think. And even better for our bank account.
It has been pointed out to me that I have more yarn than what I could possibly use before I die. When you add in the applique kits, cross stitch kits, polymer clay kits and quilting kits, my kids will have enough to pass on to their grandchildren.
In the end, it sure would be nice if my spouse understood the concept of a stash. In the absence of understanding, I guess I'll need to settle for tolerance.
Until next time ...
Susie

Saturday, January 12, 2008

Home from the Hospital and finishing a jacket

Evan got home from Nationwide Children's Hospital this afternoon about 1. He's ecstatic and so am I. We put him in bed with his own pillow, which he immediately pulled over his head. When we peaked underneath, he had a huge smile on his face.
He ended up getting a catheter placed in his bladder in surgery on Friday and the super-pubic (or the catheter placed in his bladder through the abdomen) was removed. He'll have that in for a week, when he goes back to the doctor and we wait to see if he pees. Woo-hoo!
While sitting on the love seat next to his hospital bed, I worked diligently on a crocheted jacket for my sister-in-law. Got the back and left side done. Almost got the right side done and realized it wasn't the exact same size as the left, so I tore it out and now check every row to make sure I'm on target. It's taking a long time, but at least it will match. I'm supposed to be putting buttonholes in this side too, but my sister-in-law will have to settle for those those loops of cord that loop around a button or knot of cord. I think they're called frogs. If you know what they're called, let me know!
Terry (my husband) has taken Philip and Derek and Philip's friend Tyler to a movie tonight, so I'm going to relish my first night in my own bed in almost a week. Not even sure if I'll get up in time for church tomorrow morning.
In the meantime, it's back to my jacket after a quick check on Evan. Goodnight!
Susie

Friday, January 11, 2008

You can get a lot done in the hospital

It's amazing how much you can get done while sitting in a hospital for about a week or so. I've knit a pair of slippers, knit a hat (several times as a matter of fact and I've finally decided to just frog it and wait until I get home to try again), and crocheted the back and one side of a jacket. Believe it or not, I'm getting kind of tired of it. I'd rather be doing this at home!
Evan, our oldest son, has been in Nationwide Children's Hospital since Monday, Jan. 7. He originally came in for a routine revision to his feeding-tube. He's had it since he was an infant and as he's grown it has migrated up his stomach until it was under his rib cage. So his doctor thought it was time to move it down.
We came in on Monday for radiology to put in a PICC line for IV access and surgery was scheduled for Tuesday. Surgery didn't happen until late Tuesday afternoon. What we thought would take an hour to two and a half. Turns out they lost a needle (how appropriate for me!) and did several x-rays to make sure it wasn't in him -- which it wasn't.
Then he stopped peeing. After four or five hours of trying to get a catheter in, it was decided to insert a tube straight through his abdomen. That's working well, but he still hasn't peed, so it's back to surgery this afternoon to surgically implant a catheter through his penis and find out why he hasn't been able to pee and why they couldn't get the catheter in the regular way.
Evan just can't catch a break.
He keeps saying he wants to "go, go, go, home," but no one has been able to do that so far. He angry with me and keeps asking for Daddy, because Mommy won't make it all stop.
I'm feeling extremely helpless and useless.
Usually my needle work makes me feel better, now I'm just feeling like a failure because I can't make it all go away for Evan.
Please say an extra prayer for him. He's been so patient and he's such a trooper, but he's hit his limit ... an so have I -- almost.